Hey guys, so I’m currently sitting in my wheelchair because I just filmed a video about my wheelchair and cleaning it and stuff. So, like, I just didn’t move because my setup is here. So that’s why I’m sitting in this chair. So because it’s the end of Gastroparesis Awareness Month, I wanted to do one more video about gastroparesis talking about gastroparesis misconceptions. And I’m actually going to do a bit of a “misconceptions playlist” on my channel meaning I’m going to do videos about misconceptions for other things such as fatigue, EDS, POTS, chronic illness, disability, and things like that. If you have any suggestions please let me know in the comments. And last thing I want to say before we get started is that for Gastroparesis Awareness Month I made a video talking about my story with gastroparesis and also, I made a t-shirt that is for gastroparesis awareness that I personally think is really cute (but then again I made it so that makes sense) But if you did want to get one of those, the link is in the description and the shirt looks like this. And I also have another shirt on there (the site) that’s like “not all disabilities are visible”… What is it? Now I can’t remember exactly what it says, but yes. First misconception: Everybody with gastroparesis is thin. No, that is not true at all. While weight loss is a big symptom of a gastroparesis, shockingly so is weight gain. (as is just not changing weight) But usually people will experience weight loss or weight gain. For me I honestly have to put me in the category of weight gain which sounds shocking I know and I don’t exactly understand why. I know that some people are like “Well your body holds onto fat because you’re not eating enough.” I don’t know if that’s really true though for this. I don’t know. but yeah, like It’s really unfortunate when somebody is not treated the way that they should be, or people don’t believe them because they’re not underweight or they don’t receive the same treatments. Eating is just as important if you’re thin or you’re not thin. Why does that matter!? Like you — everybody needs to eat everybody deserves treatment and everybody deserves proper nutrition amounts. So… yes. You should never invalidate somebody who has gastroparesis who is not thin, and you should never be like “How could you have gastroparesis if you’re overweight or if you’re not thin” or something like that. Never say that because that’s horrible and that’s so invalidating and it’s just not accurate at all. Next: everybody with gastroparesis is tube fed. No not true. I’m not tube fed. The majority of people who have gastroparesis are not tube fed. If you don’t know what that means, I’m talking about a feeding tube that would go into another part of their intestines, that would bypass the stomach and feed them through there Because their stomach does not work. No, that’s not true. A lot of people need them, but not everybody needs them. And a lot of it comes down to what your doctors think is the best treatment option for you. And also, of course, your opinion plays a role in it So there’s always risks that come with feeding tubes. Next: This one’s like my favorite one, even though I don’t even have a feeding tube. I just think it’s really important to raise awareness about a lot of aspects of gastroparesis — even the ones I don’t have. If you have a feeding tube, you solely rely on a feeding tube and you can’t eat at all orally. That’s not true. And a lot of people believe that. And the thing is that somebody might not be able to eat at all with gastroparesis, or very very little, but some people can actually sustain themselves partially through eating and that is amazing. And then they supplement whatever else they can’t eat — whatever nutrition they’re lacking through their feeding tube. And that’s a really good option for a lot of people, because sometimes if you’ve got a feeding tube because your gastroparesis was very bad and you just stopped eating altogether, your stomach would actually get worse. Not in everybody’s case, but I know that that’s a possibility. So it’s important to keep eating for some people. If you have gastroparesis and you have another way to maintain your nutrition such as the feeding tube, total parenteral nutrition (TPN), or something like that and you still decide to eat, you are being stupid. No Just like I said It is so difficult – like you feel you can’t even comprehend it – to not eat and to not eat for a while that you can’t just… it’s so hard! And even if you know you’re gonna get sick or you think you probably will or you’re gonna feel horrible sometimes people do it anyway. And you can’t judge them for that because 1) you’re only human 2) even though they know it’s not good and you know what the side effects are sometimes you need to just… you need to do it You need to be human because it’s literally a human thing to eat. And just because our bodies don’t work the way that they should doesn’t mean you don’t have the same cravings and the same human nature. Like that’s just… you’re supposed to eat. Your body craves it. So you should never judge somebody for that or call them stupid or say that they’re just being ridiculous or they caused it themselves and they can’t complain. Because you know what? It’s a really difficult thing to go through. (Next) gastroparesis gets better with diet. Not necessarily… not necessarily a misconception because it can be true. In a sense my gastroparesis does, because certain foods make my gastroparesis a lot worse so I avoid those foods. But no food is going to cure your gastroparesis or make it non-existent. Because the thing is, it’s not about necessarily what food you’re eating It’s just the fact that there is food in your stomach. Like certain foods, yes, are harder to digest. But it doesn’t change the fact that your stomach doesn’t work or does not work very well. That’s still going to exist. So please stop telling people who have gastroparesis to go gluten-free. I’m sure they tried it. Like and even if they haven’t, you know, that’s not gonna stop gastroparesis. like and don’t– I just hate when people try to give me stupid suggestions like celery juice. Like, it’ll cure all your problems. You know what? It’s not gonna change my genetics. And I’m not being negative I am NOT a pessimist. I’m like so freaking optimistic but I’m also realistic at the same time (even though I’m a little bit more optimistic than realistic) And I hate when people try to say that they can cure me with these stupid remedies like no That’s not gonna cure me. That’s not going to cure somebody’s gastroparesis if they go gluten free. Like that’s ridiculous. If you’re celiac it’ll cure you! Uh huh yeah. Wow I sound like a b*tch. I’m not trying to be. Sorry. That’s the way I’m coming off…. heh I hope that this informed you a little bit, now that we’re towards the end of Gastroparesis Awareness Month. I love hearing your stories and your questions, so please post below if you have any. And I will see you on the next video. Bye!